I am still playing catch up with my blog….I am very behind and for that I apologize. But…I must jump in here out of order to share this. So many of you have asked for an update on this little one.
Miss Violet is now seven months old…still full of strength, life and spirit. I asked her mother is she would write a little something for my blog to share with you all. And I will share with you some photos from her recent session with her big sister. Just beautiful…
“When I was 27 weeks pregnant we were told our baby has a rare birth defect. Our doctor said that it was likely that our baby wouldn’t walk or talk and would be severely disabled. She may have feeding difficulties and she may not live long after birth. We were given the option to terminate the pregnancy.
Termination was not an option for us. My husband and I were committed to having our baby. We had even named her already : Violet Arlene Trea Horsford. She was lovingly born without complication at home and into Hospice care.
At 4 days old, Violet had an MRI which confirmed her diagnosis. She has Agenesis of Corpus Callosum, colpocephaly and an interhemispheric lipoma in the frontal lobe of her brain. What this means is that she is missing the largest structure in her brain (the corpus callosum) which is the communicating center between the right and left half of her brain. Also, the ventricles in her brain are enlarged and taking up space where brain tissue should be. The neurologist estimated she is missing about 30% of gray matter in the back of her brain. She also has a fatty cyst in the front of her brain.
Violet has been amazing since the day she was born. She had no feeding difficulties and was discharged from Hospice when she was a month old. With the help of a physical therapist, Violet has met every age appropriate developmental milestone. She babbles, she says mama, she is social and loves to giggle and play with her big sister. She is even starting to crawl.
At her 6 month check up the neurologist was so surprised with Violet’s progress. He called her a miracle. We also took her to her pediatrician for her 6 month well child visit. Again, her doctor called her a miracle. There has been concern that Violet could have many different vision problems. At her 6 month check up with the ophthalmologist , the doctor said her eyes are perfect and that she has never seen anyone like Violet…that she is a miracle. Her physical therapist that works with her weekly has also called her a miracle.
We are so blessed that Violet is our daughter. She is full of strength and determination with a larger than life personality and smile. We praise God for Violet and are thankful for her guardian angels. She has already taught us so much in her 7 months. She is our incredible miracle and she is here to inspire us all.”
Please continue to keep sweet baby Violet and her family in your prayers!
Kimberly Whipps
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